Resources
Resources
For blogs related to the topics below be sure to check out the beneficial blogs page.
Chronic Pain
The ILC Foundation: an amazing asset to young people in chronic pain and their families. They offer one on one support and an extensive peer support network along with numerous other invaluable resources.
Chronic Pain Association of Canada: “A non profit organization providing support to people living with chronic pain”.
Life Is Now: Teaches “effective chronic pain self management” through various means such as retreats, education, pain care products and therapeutic services.
End The Hurts: Their mission as stated on their website: “we want to raise as much awareness as we can for people who suffer from Ehlers Danlos Syndrome. Please help us spread the word and help people who suffer on a daily basis from this and other invisible illnesses.”
Marfan Syndrome
National Marfan Foundation: Your best resource for information on Marfan Syndrome. It’s extremely helpful and informative. It literally covers every basic thing you’d want or need to know about the disorder.
Canadian Marfan Association: Includes the locations of clinics specifically tailored to Connective Tissue Disorders as well as volunteer hotlines for when you have questions and the names of doctors in the country who are experienced with these types of disorders.
This link provides information on the different types of lens implants that may be used by those with lens subluxation (ectopia lentis).
